I am big.  I am bald.  I sure don't feel beautiful, though.........
I was listening to my ipod while I was at chemo on Tuesday.  I have the soundtrack to Hairspray on it.  I was laughing inside when I heard the song that Queen Latifah sings on it called "Big, Blond, and Beautiful"  I thought that sounds just like me, except I am big BALD and beautiful. 
       Because of the steroids I have been on to prevent brain swelling from the tumor and brain radiation, I have gained 23 pounds in 3 weeks.  That is so depressing.  I took my last dose of steroids yesterday, so I hope that I stop gaining weight, and the weight I gained goes away quickly.  What is even more depressing is that I have gained that weight, and I haven't even been eating very much because I feel so crappy from the chemo.  You would think that if I have to go through all of these cancer treatments and be sick, at least I would loose weight.  Oh well. 
      I didn't want to be bald for my 30th birthday, so I prayed that my hair would last until then.  I trimmed my hair really short when it started falling out like crazy on Sept. 3rd.  The last few days I just put gel in my hair, and lots of hairspray so my hair was all stuck together.  Otherwise I was shedding hair EVERYWHERE.  SO messy.  I had to wear a soft knit cap when I slept because so much hair fell out while I slept.  Poor Dan kept on getting hair in his mouth at night.
    So, Monday in the middle of the night, I couldn't sleep.  I had taken a shower before bed, and when I washed my hair, I tried to rinse the shampoo out, and my hair just kept falling out, and falling out, and falling out.  I didn't want to shave my head ON my actual birthday (too traumatic).  So I went to bed, but couldn't go to sleep.  I finally got out of bed about 3:00 in the morning, and decided I was just going to shave my head.  But when I got out of bed, I tripped and fell and woke Dan up.  He helped me shave my head, and when I looked in the mirror and started to bawl, he just held me and cried with me.  This time loosing my hair has been a lot more traumatic. 
    Here are the kids responses to my "NEW NO-HAIR-DO"
Blake:  He just rubbed my head and said, FUZZY.
Bekah and Abby just gave me a big hug, and both told me they still thought I was pretty.
Caleb:  Mom, with your hair like that, you look just like Daddy's twin, and it is SO cool.
Ammon:  When I took my turban off and showed him my bald head for the first time (He was too young to remember about me being bald a year ago) he said "On Mom, put it on Mom."  and took the turban from me and tried to put it back on me.  I tried to have him rub my fuzzy head, (because he really likes rubbing Daddy's fuzzy head).  But Ammon won't even touch mine.  I think he will get used to it. 
   I will be brave and post a bald picture of me later, I just haven't had any taken of me yet. Maybe once I loose some of my steroid weight.  But here is a picture of my beautiful curls.  Maybe next time when my hair grows back in it will be pink and frizzy.  At least I know it will grow back.  And I ordered a couple more cute wigs.  I think I will just have to cover up the mirrors in the house so I don't have to look at myself.

Kristen
9/17/2008 11:52:03 pm

Amber I am wiping away tears as I read your post. You are so brave! I really do admire, respect and love you. I don't think I have ever told you how thankful I am that you and I were VT companions. Moving was such a challenge for me and I felt pretty lonely and homesick for a long time. You were so kind and inviting to me.....you saved me! Thanks

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Carol Pyle
9/18/2008 03:10:20 pm

Amber,
I am so glad I got on your website tonight. After a long day of substitute teaching at Perry School and then attending a soccer game and then a powder puff football game and then running out of gas and then homework, laundry and bedtime for kids I was feeling tired. Then I read your post and cried. You inspire me!! You are a trooper!! Heavenly Father has blessed you with such wonderful friends and family and your faith is incredible. I pray that you will continue to have strength to carry you through this battle. I think of you often. Please call if you ever want to talk.
Love, Carol

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Mel
9/19/2008 10:36:07 am

Amber- My heart is breaking for you! Thanks for sharing this blog as it helps us feel more connected to you and your family. It is such a helpless feeling to watch you go through this. I am so inspired by your words and positive attitude. I am praying for you.
Love, Melanie Grimaud

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Melissa H
9/20/2008 09:24:26 am

Hey Amber-
I just got done running my first marathon (and probably my last! =) I am so sore right now) Anyway, I wanted you to know I dedicated my mile 19 to you. I thought about you and your strength and what you go thru and your little family and I kept pushing myself thinking of you. And guess what? I was feeling so good by mile 20 I kept going to mile 21. You helped me keep going! Thank you! You are awesome.

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9/23/2008 04:33:15 am

I am so sorry. I really can't even put into words what I want to say right now. I am broken- hearted. Love you, Heather

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