Maybe hate seems a little strong. Lets try LOATHE instead. I hate the prep for tests, I hate waiting for the tests, I hate waiting for the test results. Suffice it to say then, that I LOATHE the whole experience of tests.
I am concerned that the chemo is not working. I am still having pain in the same places (left hip, femur, pelvis, sternum,) and it is getting worse not better. Plus I am having more headaches and more pain higher up my back. So when I went to the doctor on Wednesday, I requested some scans be done so we can see if the chemo is working. My fear is that if the chemo isn't working, we need to know that sooner rather than later so we can get it changed to something else before the cancer gets too out of control.
So, the tough gal Meridan at Dr.H's pulled some strings and got me scheduled for a PET-CT scan a mere two days later, when at first they told her the soonest they could do the scan was Oct.9th.
I have had a little cold, so I wasn't sure if Dr. H would let me have Taxol this week, but I insisted and he did. Problem now is, the couple of days after chemo, all I eat are rolls, bread, crackers, and 7-up and *gasp* coca cola. Well, to do the prep for the PET-CT scan, you get no carbs the day before or the day of. And you have to lay in bed and rest. No physical exertion or stress. Notice the word stress. I am a mother of 5. If I tell the kids I need to rest, and not to cause me stress, what are they going to do? You guessed it. Have fist fights, and fight, and yell, and argue, and cause me stress. Sheesh.
So, I had the PET-CT scan on Friday, I took some cool pictures of being injected with radioactive dye (doesn't that stuff cause cancer?) and I had the pleasure of enjoying my beverage of choice, barfium sulfate. Only 3/4 a bottle this time however. Now I have to wait until Tuesday to get the test results. I plan on getting to the hospital a little early on Tuesday so I can go to medical records and have my test results in hand and read through, so I can go in armed if we need to make a chemo change. I just feel like you have to take your treatment into your own hands. These doctors are so busy and have so many patients, and I just have one patient to look after. ME. I need to take the best care of myself, and know as much as I can, so I can help the doctors give me the very best care that is needed.