I had my follow-up consultation for my brain tumor with the radiation oncologist today.  We finally got some good news!  My brain tumor has shrunk to little less than half its original size in the 6 weeks since I had gamma knife, and no new brain tumors.  The rad. onc. said that usually it takes about 3 months to see this much of a response, so it was really good news!!  It's about time!  Lately it seems like we have just had bad news, so it is refreshing to actually have good news.  I had myself mentally prepared for bad news, so I almost don't know how to react to good news.  Now we just need to get the cancer under control in the rest of my body. 
     I have been having so much pain in my left hip from all of the cancer growing, that we had to increase my pain meds, and I still have to take additional pain killers for breakthrough pain.  We discussed with the radiation onc about the possibility of doing radiation on my hip so I can get some pain relief.  The plan is to try the new chemo for a few weeks, and if my hip doesn't start feeling better, I will take a little break from chemo and try some radiation.  If the chemo works to kill the cancer cells, then that should give me pain relief.  So either way, it looks like pain relief is in the future. 
    The brain MRI did show that I have some sinus problems in my left frontal and anterior sinuses, so that is actually what is probably causing a lot of my headaches, and not the tumor.  I will try to find time to visit a ENT Dr. about that.  As if I don't already have enough doctors appointments, etc.
    Thank you everyone for caring so much about me.  Your prayers and well wishes are so appreciated.  I am truly humbled by all the love and support that we are shown.  We really could not bear the burden of this trial without all of the hands that help to lift the weight of it with all of your willingness to serve and help us.  Please know how much we love you all, and we are so grateful for everything all of you do to help us.  Even though having cancer is so difficult, and the treatments etc. are almost unbearable, I am still so grateful because of all the little miracles I have seen, and even more so, to be the recipient of so much caring and kindness.  Unless we taste bitter, we can not enjoy the sweet.  And the sweetness of all the service and love that we are shown makes our lives sweet indeed. 

Melanie G
10/8/2008 11:14:49 am

Amber- What a blessing that the tumor has shrunk! You truly deserve good news. Once again, thanks for the updates and for sharing your wisdom during such a difficult time.

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Denise in Ontario
10/8/2008 12:38:14 pm

YAHOOEEEE!!!! Great news Amber and so happy to hear it. I, like so many others, are addicted to your blog and news of the good kind for us is so rewarding. You are such a gift to all of us and bring such clarity to our lives.

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Marci
10/8/2008 01:00:41 pm

Small miracles! I am glad to hear good news!

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Carol Pyle
10/8/2008 01:18:48 pm

Dear Amber,
I shed a few tears today when someone mentioned your name. You are in my constant thoughts and prayers. Hold on to that postive news..Keep the faith!
Love, Carol

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Carol Pyle
10/8/2008 01:20:12 pm

P.S. Where is your radiation oncologist? Do you have it at McKay Dee or Ogden Regional? Just wondering if it is Dr. Harris. Love that man. So kind and gentle.

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Vita Jankowski from NJ
10/8/2008 10:11:25 pm

Amber-

Congrats on the Good News!!!! Nothing beats the power of prayer. Enjoy the good news and we pray for more continued success for you!! Keep the faith.
God Bless you,
Vita

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Kristen
10/8/2008 11:14:14 pm

Amber......glad to hear some good news, like everyone else I pray for you. But I am asking for a miracle....

Looking forward to Saturday night, hope you are feeling up for it.
Kristen

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Trish
10/9/2008 11:25:35 am

Amber,

I am jumping up and down at the news!!!! Prayers do have powers!

Hope you can get that hip radiated a.s.a.p. so you can enjoy moving and jumping in the soon to be piles of Fall leaves. I absolutely love the new photo of your family. You always have the happiest face and it reminds me to live in the moment!

Thanks for sharing & being you,

Trish

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Jamie Hadfield
10/10/2008 12:52:05 am

Yea!!! I was out, in front of my house on Wednesday when you (and I believe it was your mom) drove by. After you drove by, and I relized it was you, my heart sunk, worried that you'd gotten bad news. So this is GRRRRrreat!!! I want to celebrate the better news with chocolate cake and ice cream? Or what is it that you're craving? Maybe I should bring Bekah her Fetuccine Alfredo...??? :-)
Hang in there! Love ya, Jamie

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